TweetSharePin0 SharesWe have settled down into a semi regular schedule. I am still worn out from my recent hospitalization but I am getting better each day. The kids, especially the older ones have really stepped up to help me out. I am ever so grateful to have such wonderful children. We went to Sam’s club and got a long pop-up… View Post
Where there’s a will…
TweetSharePin0 SharesA child that had a stroke at the age of 2 then again at 7. She has low tone cerebral palsy. She is a wonder and delight to all that know her. When you walk away you don’t remember her wheelchair or pudgy weak hands you remember the sharp blue intelligent eyes and smile that is as wide as… View Post
Sit down and shut up, parents.
TweetSharePin0 Shares CNN has an article up What teachers really want to tell parents I found it odd and frankly naive. The articles says “we need you to give us the respect we deserve.” The mantra of the article is trust us. It left me feeling like I should drop my child off at school, don’t question the teacher, go… View Post
Help school just isn’t working for my child!
TweetSharePin0 SharesTwo weeks into a new year and your child hates going to school? At first you think “they will get used to it” then you find out that the teacher is the problem, or bullies, or too much sensory overload, ect. ? What do you do? This is a problem I thought long and hard about when my oldest… View Post
Time to think out of the box!
TweetSharePin0 SharesI would love to tell you things are getting better but they aren’t. We did get to go to Georgia to see the mitochondrial disease specialist. That was a tremendous help and guide to our future health plans. The anti seizure medications have slowed down the seizures but not stopped them. The doctor keeps going up on them. I… View Post
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