2016 took it’s toll on me and still is impacting my health. After being as sick as I was for as long as I was there are many things that have to be watched by specialists, follow up tests and I missed many appointments due to hospitalizations so they all had to be rescheduled.
Last week as the snow was starting to come down thick and heavy we waited for a new hematologist. She turned out to be a delightful person that was smart full of ideas to help me. She got how sick I am and will be the rest of my life immediately. She remained upbeat and full of ideas rather than shrugging her shoulders and giving up.
I know I have limited time on this earth but if I am not giving up no dr should!
This dr is helping me prepare for iron infusions and possible blood infusions in the near future. I will also be having a bone marrow biopsy soon. She also helped pick an anticoagulant to try to prevent more DVTs. I will need to see her monthly for the rest of my life whether through the infusion center or for a visit.
The good side to all that is now that I have established care with her ,other drs (such as the hospitalists) have to check with her before they mess with anything hematological.
Given that you can see why this next bit of information got nothing but a laugh and a shrug. My hair is falling out. When you have a significant illness, autoimmune flare, or even a car accident there is a possibility of 3-6 week later having significant hair loss. I am losing large chunks. In the past few days I can now see my scalp in several patches all over my head.
The dr told me that I could have a treatment of steroid shots put into my scalp…. OH NO. I have to have vitamin shots, anticoagulant shots… no hair shots!
I am going to let it keep going and see if the hair loss stops. Once before I had hair loss that was bad but stopped. This has already gone beyond that. I guess I am willing to try a faux hawk if the bald patches fall in the right places. LOL
If not I have no problem rocking a bald head with a warm knitted hat or a vintage hat for my speaking events.
I will have a chat with a cardiologist soon double checking that we have tried all medications available to keep my heart rate up. A few other appointments that I pray are just checking a box and nothing to bother about.
I am going to have to go to bat with the VA once more. They are not covering my medical like they should be. UGH… Frankly I don’t want to make all those calls. Get the run around. Get told no and yes all in the same day by different sections of the same hospital. Then reverse that the next day. Even with my hubby’s help it is an exercise in frustration and soaks up time.
I thank you all for your prayers, cards, donations, and generally being wonderful during this past year! It has been an exhausting time. Trying to keep up my health, being a wife and mommy, homeschooling, having a business has stretched us soooooo thin but we made it.
This medication that I am on is the right one. How do I know? Because I feel TREMENDOUSLY better now and I still have about 2 weeks more of IV antibiotics. I also feel the drs that working with me now have a much better idea how sick I am and how badly I need them to immediately work with me when I show signs of an illness.
Facing 2017 shedding the old of 2016 if I had to pick a word for this year it would be HEALTHY. I plan on being as healthy as I can be. My family and I have talked about coming together to all make positive changes to be a healthier family.
This year is full of great hope and promise!