I wish I could say it was winter pulling me down. Or the weather. Or even the virus the kids brought back from church but it’s not. I have been struggling with energy and health since I was sick with sepsis in June. Here it is in December and I am still struggling.
Sepsis can take a lot out of a person and take a long time to recover. I have lost large portions of my hair before due to sepsis. We are talking bald patches. Ugh. Sleep can be badly messed up. I have watched the sunrise the last three days running and that is not unusual. Your body can struggle to return to normal and sometimes it doesn’t.
I have the added pressure of being on TPN, having mito, and my adrenal issues. (Those are the most pressing medical problems right now) My body is not bouncing back well.
I am having a good day every once in a while. I have had a couple great days. Most days are bleh to dismal. Then I have days where I am stuck in bed all day not even able to sit up at the table with my babies.
That means I am suffering a serious dollop of guilt this Christmas season. My lesson plan brimmed with things like caroling with the Women’s ministry. AHG Christmas party. Our annual Christmas cookie party. Those didn’t happen for me, thankfully I have a magnificent hubby who took the girlies to the AHG party.
Then comes the simple things like home decorations and baking and gift wrapping. That is happening but very slowly and spotty. I have 5 kids so they are each picking what they love the most about Christmas and doing that. Hubby is keeping the store here on the blog open and running.
The great thing is I am slowly getting better. I have a grand plan on being up and running by convention season 3 months from now. Your prayers would be greatly appreciated.
We had a referral to hospice which I asked to be switched to Palliative care. I am still waiting…. Insurance is trying to work out if they will pay for it. They think I should be in hospice. The VA is no longer even trying to help me. (That is a mess that should get its own post mito vs the VA)
We have good news on the medical front. We have out beloved genetics dr in Atlanta. Now we have a mito team in CHOP (Children’s Hospital of Philadelphia) for the whole family me included. We would have to go visit CHOP for several days for all appts at once. Then they can guide out local team. It’s expensive but necessary with many mito families to ensure care.
Lets leave this on a GREAT note. Special Needs Homeschooling as a business has had a wonderful year. That means we are reaching many more families with the love of the Lord. We have talked to thousands of families this year about special needs homeschooling. It has been a great year!
Hint… next year looks like we will reach even more! And while I am stuck in bed sick I have been outlining a new book idea…
As we enter Christmas week I pray you all have a calm and wonderful holiday. I would love if you spare us a moment of your prayers. That we all may be healthy and our outreach for the Lord and special needs families be even better this year.