I am a Christmas fanatic. You can hear me humming Christmas carols during spring cleaning and my lights are on until the snow leaves the ground. I love Christmas.
No, WE– the whole family– LOVES Christmas!
I love the feelings that Christmas brings. The warm homes full of joy and laughter. The families gathering together to share love and enjoy being together.
Mitochondrial disease means that I don’t know if this is my last Christmas or just one of many more the Lord will bless me with. Right now I am weak from a series of blood infections and a bout with sepsis. I feel more emotional and weepy. All those Christmas songs on the radio that talk about missing someone at Christmas just about break me every time.
**prayer request, as I was writing this post I had to run to the dr. The dr took another blood culture concerned there is yeast in my blood as well as bacteria or the bacteria has become resistant.**
Christmas Shoes…. Yeah it is on my Youtube list but ouch….
As a family with special needs and mitochondrial disease there is more to each and every holiday or birthday we have. I realize you should be thankful and feel blessed for each and every day but lets face it normally you just move through life. There are points when life’s blessing is clear like here at Christmastime then it fades.
It’s like living in emergency mode. While your life maybe in emergency mode for weeks or even months or possibly years but realistically you can’t think about it every day. You just get through. Put your head down and do the next thing necessary.
I want to be sure to not live in high stress emergency mode or thinking about how much time I have left on this earth. I would like to live in the here and now making memories and having great experiences with my family. Chris and I have thought a lot about how to share a fulfilling and loving life with our kids so we started Legacy books with each of the kids.
As we see it a Legacy book is a book that is an open journal ready for out thoughts, drawing, momentos. Things like on the first page I outlined the kids hand the day we gave them the book and had them write their name and date we started. Then we will move through each book writing down special things for each child.
This helps me know that my kids will know about their past. Simple things like what I craved when I was pregnant with them. The kids will also know that I loved them. I wanted to be part of their history and future by creating this book with them.
I bought simple acid free journaling books from an art store. I gave them to each child for Christmas. Then I sat down that day and started our books. This will be a long term project that will be first and foremost a loving creation for us to share through the years. Second for you homeschooling mommas these books have become a great way to add meaningful language arts, writing, and drawing skills into our lives.
Merry Christmas my friends!
May God bless your family abundantly this coming year!
What tradition do you have that you are passing on to your family?