Tag Archive: disabled child

Mito Families- 10 Reasons to Ditch Your Doctor

Here are 10 reasons to get a new dr from a battle hardened patient with a complicated disease. And a MOM of kids with the same nasty disease. From the ER to the pediatrician’s office you can have a great doctor or a stinker. Here are 10 ways to know that you have a dud…

Allergen Free Moon Sand!

  This was an adaptation from Pinterest and an old craft book I had on my shelf. This smash up recipe is brought to you FREE to use in your home. Learning letters to fine motor skill therapy work! 4 cups play sand (I used non-colored sand out of concern of possible dye issues) 2…

A Life in Balance {review}

  I have recently read the book, “A Life in Balance: Discovery of a Learning Breakthrough” by Eric Belgau. Telling the story of his father Frank Belgau, creator of the Learning Breakthrough Program.  A touching story of a young boy struggling with learning and reading. He has a never give up attitude and finds ways…

You are Special Dear Momma

If you are a long time reader then you know that last year was a nightmare. I was in and out of the hospital. Had several surgeries. Lots of appointments and infusions. It wasn’t just me though. My children also had a horrible year. Mito caused my teen daughter to have a stroke. 2013 was…

The Challenge: Day 7 Kids and Chores

Still working through Tricia Goyer’s book Balanced. Working on Day 7 of the challenge teamwork. Having the kids and hubby join in to help run the house. Teamwork (Chapter Seven) Many hands make light work—and moms, you shouldn’t feel the need to do everything yourself. Schedule a quick family meeting today to talk to your…

Medically fragile kids heads up!

I have been told by several families that the Children’s Hospital of Atlanta is full in their high care beds. The website says they are open 24/7 to all in need. I don’t doubt that for a second. You do need to be aware that if your child needs a high care bed because your power has…

The Unseen People

A year ago this video of a child being placed to the side and basically ignored during a choir concert went viral. Many people rose up and voiced their indignation at a child in a wheelchair being treated in such a callous and dismissive way. A year later I wish I could say things are…

5 Questions You must ask before putting your child on medication!

**Oldie but goodie*** Parents do not casually put their child on medication. It’s a tough question and usually there is a lot of advice being given to you. What is a parent to do with all the pressure? If you are trying to make this decision with advice being offered from all sides how can…

Walt Disney Parks and Disabled Guests

You may have heard about the coming changes in the Guest Assistance Card (GAC) at Disney parks. The program is changing as of October 9th. It will become the Disability Access Service Card (DAS). It is touted as being very similar to the GAC program but creates a more even experience for all guest both…

I am an Inadequate Homeschooler!

I am the 2 inch tall mom in the support group of giants. I am the mom that tries so hard to help my child catch up to grade level while others are talking about college at 12. I am the mom that can’t sit through an entire homeschooling workshop because I choke up in…