Silencing our Stories of Alternative Therapy

Silencing our Stories of Alternative Therapies

Years ago my family was told by a doctor to immediately remove all glutens and caseins from our diet. That doctor and another also encouraged us strongly to start a cocktail of vitamins and supplements, known as the mito cocktail. When we came home our pediatrician was very dismissive and underwhelmed by their advice. She didn’t think we really needed to make these changes.

We chose to push forward make the dietary changes and add the supplements.

Over the years my children have shown clinical and lab proven changes for the better. Do these changes take away mitochondrial disease? No. Do they help us in other ways yes.

But can I tell you that story? Perhaps not according to the FDA and their regulators. A friend of mine Tabitha recently got the raw end of the alternative medicine experience sharing her family’s story. Makes me wonder if you and I can share our experiences with dietary changes, supplements, or other alternative therapies.

Censored by the FDA

from Meet Penny

Here is what happened to Tabitha…

Meet Penny 

So, the FDA is telling you that you cannot share your personal experiences? This is one of the scariest things I have ever heard.

I can only share what is proved by scientist. I cannot mention specifically an ailment or what I used for the ailment.

I am just a mom. hmmm that is a HUGE just and I am proud of that mom status! I am aware of the changes that have happened in myself when I went gluten free and my children’s changes. I find it ridiculous to try to muzzle simple sharing of personal experiences.

Can I talk about trying a Paleo diet, essential oils, music therapy, not too long ago visual therapy was considered alternative. Sensory integration disorder was made up and OT therapy was useless. We know now that visual therapy and OT therapy for sensory issues is incredibly helpful.

I also think that being able to share my own story is my right. It’s over reach to tell me what I can and cannot write on my blog as long as I am not pretending to be a dr and lying about the product/therapy/diet to make money. Go watch a show like 60 minutes and you will see health stories about how bee stings help MS patients. Are they too being censored for talking about alternative health options?

What do you think? Should alternative health options be kept off-line and only those validated by FDA science be allowed to be published? Where is the line between snake oil (fake solutions) and real alternative options?

I am going to keep talking about our personal experiences as a mom. You are welcome to leave a link to your personal stories as well.

iWitness 3 Book Series {review} Apologia Educational Ministries

  Do you study where the Bible came from with your children? We start our day off with Bible work and I love to add in worldview and historical Bible reference material. That can mean straight reading from the Bible and writing out scripture, worldview reading, or the history of the Bible and it’s people. Archaeology has long been…

The Merry Maddness of Fall

What has been going on? LOTS. Last week… I noticed at the beginning of the week we had so many reviews to do that I was going to have to set aside our lesson plan. This is also fall and there are so many fun things to do on the fly! We have done several…

Who Defines My Last Days?

I have decided to allow the Lord to define my time here on earth. ALL of it. What I am doing now. What I will be doing in the future. How long that future will be. Even how I choose to respond when the last few days are here. There is such PEACE is that…

Peeling Peaches or Tomatoes!

    Gluten Free Friday! Yes, it’s Friday and technically this is not a gluten free recipe like last week’s Pumpkin Invasion! BUT it is great to know to speed up your time in the kitchen. Especially later when we do get to gluten free recipes for canning or batch cooking that take pounds of…

Choosing Dignity When Dying

Dying with dignity is the question of the day in many circles. How did that come to be equated with assisted suicide? Did I miss a memo? I am planning on dying with dignity, on God’s time, not my own. In my home with my family around me and hospice assisting as needed. You have…

Super Simple Fall Art

Fall Art Worthy of the Livingroom Wall! Supplies: Canvas Painter’s Tape Autumn colored paints (stick to 4 colors) Consider your canvases as a tree as if you were looking upward into one. The tree goes from bigger to slightly smaller. All branches come off the tree and go upward slightly. Restraint is key to making…

To Marry Again or Not

Marriage thoughts for when I am gone. What should a wife or husband say? This is our personal look at whether we (Chris or I) will marry again or not. As the mate dying I have been told repeatedly I had to tell my husband it’s alright for him to move on and find another wife someday….

Gluten Free Pumpkin Invasion!

  I am excited to share with you a Gluten Free collection of Pumpkin recipes! I have a kitchen full of love, pumpkins, and pumpkin goodies! Fall is here and everyone is talking pumpkin! Well WE are talking gluten free pumpkin recipes. No need to have upset tummies in the house. AND for an extra…

To Not Be…

Have you ever considered what would happen if you didn’t wake up? What if your ride home from work was cut short and you died? When I was younger and a thought about my mortality or that of my husband and children it would pass through my head I would think of sadness and utter…