Purpose in my Final Days, Blessings from the Lord

Kara Tippetts passed away this past Sunday. She wrote a letter to Brittany Maynard about the same time I did (Choosing Dignity When Dying) about Brittany’s choice to end her life last fall. Those that agreed with what Brittany called dignity with death (really assisted suicide) were strongly vocal and at times unpleasant. Once more that hornet’s nest has been stirred with Kara’s passing.

Just so we are crystal clear about where I stand.

I am choosing DIGNITY WITH DEATH by allowing the Lord to define all my days.

 

Purpose in my final days, blessings from the Lord

I have laid on the floor of my kitchen not breathing after a bad seizure and needed my husband to resuscitate me. If you know anything about seizures then you know that they are messy and horrible things. The day is done. I am exhausted from then on. My memory is fuzzy. Then comes the attack nap as we call it, post ictal nap. You can’t help but go to sleep.

And yet I keep going. I keep taking my medications. I keep taking IV hydration and nutrients. Why would I put myself and my family through these moments… because they are only that moments in passing in a larger perspective of a wonderful life. A life that matters and is worth fighting for!

Life is a Blessing!

I am a saved Christian. That means that I have accepted that I am a sinner. I have accepted that Jesus is the only way to heaven. He is my future and present. I have placed my faith in Jesus. That complete surrender to Jesus creates a peace and calmness about dying that is beyond my human strength and ability.

There is no pain in death for me as a person. I will die and be in the arms of Jesus awaiting those I love …. No pain, medications, or seizures. That will be a delight.

However I do admit I am very human. I have 5 children that I can’t leave. I don’t want to (said in my whiniest voice). I have a husband that is Mr Wonderful. He is working hard to meet my needs and watch over his children. Leaving his job to care for his family. How awesome is that!

Life is worth fighting for. I do know what it is like to have oxygen, IV food/fluid, even feeding tubes. I also know what it is like to have all that and still know that it is not going to cure me.

slowly winding downI don’t have a crystal ball. I don’t know if I will have a stroke tomorrow. Or live for another year slowly winding down like a tinker toy.

I do know that I have a purpose to for being here. When I blessed to speak to others about homeschooling, dealing with medical issues, or how to have a peace-filled home the Lord brings those that need uplifting in a very special way. There are few who are in our situation and can with authenticity speak directly to the hearts of other special needs families. The Lord has taken this nasty disease the whole family is dealing with and crafted it into a blessing.

How can I possibly deny Him by ending my life early. I will fight until I am told to put down my burden.

I stand firm on my declaration that the Lord will Define my Days.

Ann Voskamp wrote a poignant article about Kara, How to Recover the Lost Art of Dying Well: What Kara Tippetts Taught Us

Common Core Encourages Close is Good Enough

Is close good enough or should we be working towards correct? Thanks to Common Core grading and executive function heavy techniques we are allowing wrong to be right if its close enough. I realize there is a wide road with Common Core where the teacher can lead their classroom similar to what previous generations grew up with. There is however a growing…

Awkward Conversations for Special Needs Moms

When you have BTDT (been there done that) and have the T-shirt how do you respond when a friend asks, “I think little Mary is not hitting her milestones on time. She doesn’t look anyone, even me, in the eye. What do you think?” Oh how easy that slips off the tongue but does that…

Helping Little Princess See!

Visual learning disabilities are common in my family and my husband’s. Not just needing glasses but more brain based problems such as dyslexia and visual processing disorder. The mitochondrial disease we deal with is based out of our brains with lesions and in our eyes optic nerve atrophy. We don’t have strong eyes. Recently my littlest…

Frugal Travel, Conventions on a Dime!

Want to start homeschooling? A homeschool convention is the perfect place to start. It’s where I started many years ago and I now I am homeschooling 5 children from high school down to 1st grade. I am so thankful that I went to a homeschool convention! Let’s shout it from the rooftops it is SPRING…

1 in 10 People have a Rare Disease

If you are dealing with a rare disease you are NOT ALONE! How many others have a rare disease? Cleveland Clinic says that 1 in 10 people have a rare disease. That means when you go to the store you are surrounded by people that either have a rare disease or know someone that does….

Easy Frugal Sunday Chicken Dinner 4 Ways!

Low on energy? Low on time? But you want a delicious healthy meal that you can gather the family for? Then here is 4 options. All you need is a roasting chicken and some spices. You can use your oven and roast the chicken or use your crockpot. You can even buy several roaster chickens…

Momma Can’t Hold You Anymore

My dear littlest one how can I help you understand why mommy can’t pick you up anymore? How can I explain that I used to be able to drive the van like daddy, now I can’t? That like other mommy’s I could walk and eat food? I am so sorry my princess but I can’t…

The Educated Parent and the Vaccine Debate

  If you vaccinate you are the perfect caring parent with a child that is healthy. If you don’t vaccinate you are either a green crunchy hippie or some religious zealot that is grooming a child to be a danger to the community and on a base level unhealthy because they could carry diseases to…

Taming the Executive Function Mess

  Consider the skills and thinking of a person dealing with Executive Function Disorder. The dots are there but the connections are not being made. Or they are being made is such a long convoluted manner that time, effort, and frustration come easily. We need to figure out how to help tame the tangled yarn…